Jacksonville, Take Steps to Find a Cure!
Most of you know my story by now, so this year I thought I would let you know why I keep walking and raising money.
I do this year after year because even though I look healthy and feel healthy, I deal with the effects of having Crohn’s every day of my life. I still deal with the effects of all the medications I have taken in the past, like my receding gums, weakened bones, and the obvious effects of having my colon and rectum removed, by wearing a bag on my belly, and all that goes with that!!! Now 50 years after being diagnosed, there have been many advances in the treatments of the symptoms, but there is no cure! Not yet! That’s why I keep walking, and that’s why I keep coming back to you and asking for your help to make a cure possible with your donations!
I thought this year I would let you hear my husband’s side of the story living with a Crohn’s patient for almost 29 years.
Judy and I have been married for almost 29 great years, but I have to say, the first six or seven years were a challenge. I love Judy, and I have to admit, her Crohn’s disease defined her, and also my life. When her Crohn’s flared up, she was in excruciating pain, lived with a constant fever, and was missing out on family life even though she thought she was keeping up and participating in the family. Even when not in a flare, we knew where every restroom was in every mall, shopping center, store, restaurant, gas station, etc., and there was the constant fear of embarrassing accidents, which were not unavoidable. They happened! Sometimes frustratingly often. She endured this life for over 20 years and had a brush with a near fatal round of sepsis. It was very, very hard for me to see her endure this. Yet she hung in there until she was ready to have her operation. Judy is very lucky! She hasn’t had any symptoms since her operation. She’s lucky in that experts say Crohn’s is never cured. It just goes into remission and usually comes back. But now she’s dealing with the after effects of the harsh medications that were the only ones available to her back then.
Today, there are much better medications available to Crohn’s and Colitis patients. Much of the research that brought about these new medications were made possible through funding by the Crohn’s and Colitis Foundation (CCF). And CCF provides patient and family support that would have been very helpful for us if it had been available when we needed it. Please support Judy and others you may know what are suffering from these diseases. These diseases are debilitating and steal away their lives and are more common than you think.
Just about everyone knows someone who is affected. Every little bit helps. So please help with your generous donation by clicking the orange button at the top of the page.
If you would prefer, you can send your check payable to:
Crohn's & Colitis Foundation (CCF)
4581 Crosstie Rd N
Jacksonville, FL 32257
Thank you so much for all the love and support you have shown me over the years.