August 31, 2018 started like any other morning. We survived the first week back to school, go us! While still at work, I received a call from Moriah's grandfather telling me that Moriah didn't feel well. I ended up speaking to Moriah and she couldnt' really tell me how she felt. All she could tell me was she felt bad!! I told Moriah to skip gymnastics practice and go home with her grandfather to rest until I got off of work. By the time I was able to make it to Moriah, her grandmother informed me that Moriah had thrown up but seemed to be doing ok afterwards, as she had asked for something to eat. We planned to go out to the coast for Labor Day weekend and what an adventure it turned into.
On September 1st, we started to get ready to go to the beach but Moriah still hadn't made it out of bed to have breakfast. I told her that if she didn't have breakfast, she wouldn't be going down to the beach. She begrudgingly got out of bed and had a bit of a french toast sticks and almost immediately began vomiting. I told Moriah that I would stay home with her while Mr. Hatch and Jacob went to the beach, but she wasn't having that. She ended up spending the whole time at the beach vomiting and pretty much face planted into her beach towel. I literally thought she picked up a virus from all the children returning back to school.
Moriah vomited for four days before I contacted her pediatrician. She could not keep down a teaspoon of water or even a bite of a cracker. She hadn't gone to the bathroom in days. The pediatrician instructed us to take her to Levine's Children's Hospital, which we did. It was a pretty awful experience to say the least!! The PA on duty told us Moriah's vitals were elevated and this was a classic sign of dehydration. A few hours later, the attending came in and inquired if Moriah's father and I knew about what was going on in Puerto Rico. We were both puzzled and did not understand the correlation between Puerto Rico and our sick child. The attending went on to tell us that Puerto Rico is the largest supplier for IV fluids and since the hurricane there had been shortages. The attending continued to tell us that they were saving their IV fluids for their most critical patients. Even after running an IV line, Moriah never received any IV fluids. Ultimately, we were discharged home with Zofran to help with nausea. We literally had to physically carry her out of the ER. She was weak! She was not talking! AND she continued to vomit!
On September 5th, I planned to wake up really early to give Moriah her Zofran, to try to get ahead of her vomiting episodes. When I entered her room at 7am that morning, she had made a pallet on the floor and was literally laying it vomit. She was too weak to even get up to vomit. I changed her clothes and after talking with the pediatrician, it was determined that Jeff Gordon's Children's Hospital is where she needed to go. Within hours of getting to the ER, Moriah was admitted. She was tested for brain tumors, scanned from head to toe for cancer. She was tested for a rare genetic disease called SMA. She was tested for H-Pylori, Celiac's Disease and Crohn's Disease. During this whole ordeal, Moriah already had 5 different IV lines started. Twice the OR team had to be called because her little body began rejecting the IVs and the nurses weren't able to successfully get a line started. Unable to hold down any food or water for days, Moriah was now down 13 pounds. On September 12th, the decision was made to provide nutrients to Moriah via a PICC line. I must admit, she was a trooper getting the PICC line in!
Can you imagine bringing your child to the ER thinking they were suffering from dehydration due to a virus but instead the doctor's tell you to consider transferring your child to Duke, UNC or Wake Forest Hospital as they have robust pediatric GI programs?! The medical team at Jeff Gordon Children's Hospital wanted to make sure a full work up was completed before transferring Moriah. This way, the accepting hospital could skip preliminary testing and immediately begin working to find answers because Moriah continued to vomit. We are truly thankfuly that a transfer to an out of town hospital was not needed!
As mentioned earlier, Moriah had undergone a battery of tests. To our relief, on 9/12/18 we finally received the name of what changed our lives as we knew it; small bowel Crohn's Disease. We have learned a lot through this experience, mostly that Moriah is a STRONG girl! A few times I had to excuse myself from the room to avoid passing out, but MO, she took it like a trooper.
It has been three years now since Mo was diagnosed. Lots of ups, downs, procedures, medication changes, labs etc! BUT, she is determined to keep fighting and to continue helping others! Please join Team Mo and donate if you can! Every team member and donation is truly appreciated! <3
1 in 200 Americans live with Crohn's disease and ulcerative colitis, yet there is no cure. That's why Team Mo is participating in Take Steps on 05/21/2022!
Our team will be uniting together for hope, and walking together for cures in a welcoming and inspiring event. We're joining our community in the fight against IBD and have set a team goal to raise more than $500.00 for the Crohn's & Colitis Foundation!
IBD affects more individuals than you may think it is estimated that as many as 3 million Americans suffer from Crohn's and colitis every day.
Your donation will help support local patient programs, as well as important research projects. Please join our team or donate to our efforts to support crucial IBD research.
Want to see who's already on Team Mo? View team members' personal pages by clicking on their name on the right side of this page. Thank you in advance for making a difference in the fight against IBD!
1 in 100 Americans suffer from IBD and currently there is no cure. Our team is walking and raising money to support the crucial work of the Crohn’s and Colitis Foundation. Take Steps brings the community together in a fun, family-friendly and supportive atmosphere and lets patients know they have a community who supports them.
Please help us reach our team goal of $1,000.00 for Take Steps Symphony Park by donating or registering and fundraising. Your support will help the Crohn’s and Colitis Foundation invest in cures for the future, while providing support to patients today.
Leaders in Research: The Foundation has been a leader in inflammatory bowel disease (IBD) research since their founding more than 50 years ago. They fund cutting-edge research studies and clinical trials at major medical institutions, and finance underdeveloped areas of research.
Empowering Patients and Caregivers: The Foundation serves more than 1.2 million patients annually, empowering patients and caregivers through education, support, and advocacy programs.