Hey Family and Friends,
As many of you know, since August 2021 I have been pretty much out of commission and in and out of the hospital because I was diagnosed with Acute Severe Ulcerative PanColitis. I was miserible, in pain, dehydrated, malnurished, and significantly underweight for months after my diagnosis while we were trying diets, medication, and biologic infusions. I was so sick with a nasogastric tube, IV nutrition, and failing medical management that we had a desicion to make. With the support of my friends, family, boyfriend, amazing gastroenterologist Dr Hanson and colorectal surgeon Dr Davis at Atrium Health, we realized that my only option was surgery to remove my entire colon, yes, all 5ft of it. This left me with a temporary iliostomy with the end goal of creating a J-Pouch, or a reservoir in place of a colon, out of the end of my small intestine so I would not have an ostomy bag.
While this procedure in the end was successful, it was not easy and would involve 3 additional surgeries and even more hospitalizations. I am currently 2 weeks (as of May 5th) post-op from my last procedure and doing great. I am so thankful for everyone who has supported me mentally and physically over the past 10 months of scary but life-saving treatment and so happy to be on the other side.
Hopefully I can raise more awareness about Crohns and Colitis through this fundraiser to try and continue funded research and support! Yes, I know it is short notice but really anything is appreciated! Below is more information about the disease, organization, and event - please reach out if you have any other questions!
Crohn’s disease and ulcerative colitis affect more individuals than you may think – millions of Americans suffer from inflammatory bowel disease (IBD). Take Steps is the Crohn’s & Colitis Foundation’s largest nationwide fundraising campaign, helping to accelerate the progress of breakthrough research and to support critical patient programs. Take Steps also brings the community together in a fun, family-friendly and supportive atmosphere so patients know they are not alone.
Please help me reach my personal goal of $4,000.00 for Take Steps Charlotte so that together we can support the crucial work of the Foundation. Your donation to my fundraising efforts will help the Foundation invest in cures for the future, while providing support to patients today.
Leaders in Research: The Foundation has been a leader in IBD research since their founding more than 50 years ago. They are accelerating the pace of research by breaking down traditional barriers to patients, data, funding, and collaborations, as well as catalyzing critical cutting-edge research studies and clinical trials at major medical institutions, and financing underdeveloped areas of research.
Empowering Patients and Caregivers: The Foundation serves millions of patients annually, and empowers both patients and caregivers through education, support, and advocacy programs.
Do you know someone who is affected by Crohn’s disease or ulcerative colitis? Join my team or share my fundraising page to spread awareness in the community!