It's that time of year again!
2018 was a BIG year for me! I got married, I started a new job, and I moved to Oklahoma! I decided that I would not be doing the walk this year because I moved to a different state. But then.... I got sick...really sick!
After a few days in agony, I finally had the guts (haha) to go to the ER. I was in extreme pain, I could barely sit up, and I couldn't get out of my bed for 3 days. I was tired, I was running a high fever, I had chills and I just felt crummy, like I had the flu.
I wrote down my symptoms in the ER and I was immediately whisked away to a room, while I heard "code sepsis" over the speakers. Then, 3 nurses rushed in to start working on me. I was scared but I just wanted to feel better. After a few tests, they told me that I had an abscess and I would have surgery as soon as possible.
The surgery was incredibly painful and after I was released, a home health nurse came to my house every day to help. The recovery was long, it hurt, I didn't feel good, and it was a little embarrassing (RIP my dignity). I decided that I NEVER wanted this to happen to me again.
A little over a month after my surgery, I had a scope to find out what was going on. My doctor told me that I had 2 fistulas (that caused the abscess) and very moderate inflammation in my small intestine. I was surprised because I didn't think I was THAT sick and I was very shocked to hear about 2 fistulas. He said, "Well, you have perianal fistulating Crohn's disease." WHOA. WHAT? I have NEVER heard that before, so I googled it. The first thing that popped up was Perianal Crohn's disease is "associated with a low quality of life." I was devastated. My eyes filled up with tears as I read about this disease. The "low quality of life" comes about because of the location of the disease, the level of pain, the difficulty to treat, and the complications....
I don't want this disease. I just got married, I want to be in wedded bliss. I just started a new job, I want to see what I can do next. I just moved, I want to explore and meet new friends. I want to work out, I want to travel, I want to cook delicious food, and I want to have a baby.... So many thoughts ran through my head as I was trying to process this new diagnosis.
If I don't try to raise money to help find a cure for myself, it may not happen in my lifetime. That is why I am Taking Steps to find a cure. I do not want help to maintain this disease. I want to help cure it.
We formed this Take Steps team because We know the power of teamwork. We know that when we band together, we can have an even greater impact on patients and families living with these diseases.
We can fund more research that will accelerate better treatments for patients.
We can help deliver education programs for patients and families.
We can help bring the community together and ensure everyone feels safe and supported.
We can fund THE research that leads to cures!
I know we can have a lasting impact on this community. Will you join our team and fundraise with us so that, together, we can make a difference today?