I have had Crohn’s for almost 30 years, and this is my 10th year leading a walk team.
Can I be honest?
I hate walking and organized team events! So why do it?
Having Crohn’s or Colitis really stinks …
Diarrhea like water several times a day, malnutrition, dehydration, loss of energy, headaches, low immunity so colds and infections linger, depression … and this is just the high-level list.
What? Too much information? Try living with it.
It is so much more than a disease that just keeps you in the bathroom!
Did you know that 1 out of every 200 people has Crohn’s or Colitis?
That is 1.4 million Americans!
Growing concern is that approximately 140,000 are children and teens.
Think back to growing up. Exams, dances, dating, parent conflict … gosh, just peer pressure alone… these were all stressful moments. It was a time in your life when being part of the crowd was so important!
Now imagine you’re a teen with Crohn’s – stress plays a large role in triggering flare-ups.
*How do you explain to your date that you suddenly can’t go to the dance?
*Or that you are just too tired to hang out?
*Or why the teacher that NEVER lets anyone leave the room yet, gives you no trouble about leaving the room without asking – even during exams?
*Or why you don’t feel comfortable going on the youth retreat with all of your friends because someone may joke about the lingering odor in the bathroom … and realize it was you?
And when you try to talk to your friends they may not take it seriously. You find yourself on a very private, lonely island.
After all, you don’t look sick. You sure don’t sound sick.
But you are sick…and it affects every area of your life.
A portion of the money raised through this walk provides scholarships for kids, and teens, to attend Atlanta’s “CCFA Camp Oasis”.
It is a weeklong camp (overnight) where they can talk to other kids about their disease without boundaries, have meals tailored just for them, and see that they really are not alone in this fight.
Life changing … completely life changing.
Why do I walk?
I walk to give a voice to the young person or adult who thinks that they are on that island. I also walk to be reminded that I am not alone – keeps me off the island!
Please consider making a donation to support me …
YOU will be the voice for someone who feels they have none with this disease.
YOU will be their hope that they are not alone and do not need to be ashamed.
YOU will rock their world
And YOU will rock mine.