Today, May 19th, is World IBD Day, so it is the perfect day to launch this!
My name is Hudson Goldman, I am 17 years old and a junior in high school. Almost two years ago, in the middle of the pandemic, my life changed in a pretty drastic way. While the world was trying to figure out how to deal with COVID-19, I became extremely fatigued with excruciating abdominal pain, and I dropped 12 pounds in one week. I was admitted to Children’s Hospital Los Angeles and after some tests and scopes, the doctors confirmed that I was in an extreme flare and was diagnosed with Ulcerative Colitis. My family and I knew nothing about IBD at this point, and we were pretty devastated to find out that this was a life long condition that had no cure yet. This was a hard thing for me to wrap my head around while I spent the next 6 days at CHLA and did my best to participate in online school from my hospital bed. I was lucky to have amazing doctors and nurses at the hospital that helped me gain back my strength. I learned about my different medications and dietary changes that I had to make. I found out that over 8 million people all over the world have IBD, but much of society has no idea what it is and how it affects a person physically and emotionally.
It has been almost two years of different medications, and infusions, and I am still learning how to live with my condition. I give myself an injection every 4 weeks of a special biologic medication, I eat a limited special diet, exercise, and try to destress as much as I can. When I am in remission I live a pretty normal life, I love hanging with my friends, listening to music, creating art, watching movies and learning new things.
This is a very hectic and important year for me and my family. I am in the process of researching colleges. I am extremely passionate about track and field at the collegiate level. I am a sprinter, and I strive to run Division 1 in my events. UC affects me as I struggle to gain weight and have had a number of flare ups, changes to my medication, and pain while running. Sometimes it takes me a little time to get back on my feet, but I am not letting IBD dictate my life goals or stop me. I set new records at my high school this track season in the 100 and 200 meter sprints. I am proud of myself for pushing through the pain and flares in my gut and continue to get faster in each race I run.
It is very important to me to do everything I can bring awareness to IBD and help find a cure. The disease can turn your life upside down and one of the scariest things about it is the unpredictability of the flares. It sometimes takes years to get a proper disease diagnosis because it is some what below the radar and the symptoms can be embarrassing and often treated just as some kind of gastro irritation. I want to bring more public awareness because many children are afflicted at a much younger age than I was, and it so scary for them and their families.
I am hoping to raise as much money as I can for the Crohn’s & Colitis Foundation. Finding a cure can help millions of people who have to live with this chronic illness and and so many have symptoms and complications that are so much worse than mine. I am hoping to help myself and other IBD patients to live normal lives, eat what we want and have the energy to do any activities we want and live without pain.
Please help us by donating to our walk!!
My team is walking and raising money to support the crucial work of the Crohn’s & Colitis Foundation. Take Steps is the Foundation’s largest nationwide fundraising campaign, helping to accelerate the progress of breakthrough research and to support critical patient programs.
The Foundation has invested more than $400 million in research toward cures since its inception. They remain laser-focused on reducing time to disease diagnosis and improving disease management. The Foundation continues to lead the way in critically important areas of inflammatory bowel disease (IBD) research, and to accelerate novel therapies and innovative products that address unmet patient needs.
Empowering Patients and Caregivers: The Foundation serves millions of patients annually, and empowers both patients and caregivers through education, support, and advocacy programs. Examples include COVID-19 resources, expanded pediatric support, influencing legislation, and focusing on diversity and inclusion.
Do you know someone who is affected by Crohn’s disease or ulcerative colitis? Join our team and share our fundraising page to spread awareness in the community!