St. Louis Take Steps

Our beautiful Eloise
Our beautiful Eloise

Team We Love Eloise

Millions of Americans are living with Crohn’s disease or ulcerative colitis, and currently there is no cure. Team We Love Eloise is raising money to support the crucial work of the Crohn’s & Colitis Foundation. Take Steps is the Foundation’s largest nationwide fundraising campaign, helping to accelerate the progress of breakthrough research and to support critical patient programs.

Eloise was diagnosed with Ulcerative Colitis, (chronic inflammation of the colon) in October 2019, at four years old. Although IBD runs in our family, we were shocked given her age.

A diagnosis of Inflammatory Bowel Disease before age 6 is considered Very Early Onset (VEO). VEO-IBD patients typically have more severe disease, they are more likely to need surgery and as it appears to be true in Eloise’s case, conventional therapies often times are not successful.

Eloise is now six years old and her journey with Ulcerative Colitis has been heartbreaking for her and the many people who love her. Eloise has been hospitalized six times over these past two years, for a total of 8 weeks. Besides missing a lot of school, holidays, and fun activities, this disease has also caused her incredible amounts of pain. A few weeks ago, Eloise climbed into my arms, buried her head in my lap and asked if we could pray for her body to heal.

Eloise has had blood and iron transfusions, at least 30 IV’s placed, countless blood draws and many other procedures and tests. Our house is filled with guilt gifts from colonoscopy preps. She’s gone days without eating anything that wasn’t a clear liquid, where I would hide in the hospital bathroom shoving Cheetos down my throat so she wouldn’t see me eat.

There are only a handful of medications approved for IBD and none specifically meant for children. Eloise is currently on three immunosuppressive medications to attempt to control her IBD. The side effects and risks are awful and would make any parent sick. Giving your child these medications during a pandemic is extremely stressful and scary. At the same time, we constantly pray that one or a combination of these medications will work to control the inflammation in her colon.

Without a cure, IBD will impact Eloise’s life forever, which is why we are participating in the Crohn’s & Colitis Foundation's Take Steps event in St. Louis this year.

Please considering joining our team or donate to support Eloise and the Crohn's & Colitis Foundation. Your donation will help the Foundation invest in cures for the future. Our family greatly appreciates any and all support. We will always be on Team We Love Eloise.

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