Pittsburgh Take Steps

Infused Fighters

Hi everyone! I am Kenny day and I am currently 12 years old. My story began Four years ago when I was 8, I was starting to lose weight, I went from 85 lbs to 55 in a matter of a few months, and every meal I would be in extreme pain. We knew something was wrong, so I had to go through many tests and doctor’s appointments. When I was 9 years old, the doctors thought it was serious enough for me to spend 4 days admitted to Akron Children’s Hospital. It was so close to the holidays that my family thought I would spend Christmas admitted, but thankfully I got out right before. That fun trip was when I was diagnosed with Moderate-Severe Crohn’s disease. About a week after my stay I had my first Remicade infusion, and I have been on it ever since.

On January 8th 2020, I was having a good day, but in the evening I started feeling like I was entering a flare up, and it escalated until we had to go to the E.R. I had a C.T. done, then they determined it was a Bowel obstruction and I needed emergency surgery. I took a 2 A.M. ride in an ambulance up to Akron Children’s main, where I had a bowel resection the next day. The joke I told was, “Hey you know I am a foot shorter from the inside!”

When we found out about the Crohn’s and Colitis foundation we were so very happy. We have been doing Take steps for 3 years and my family and I are very pleased with the program. During the 2020 Take steps fundraising, I decided to have a lemonade stand dedicated to Crohn’s and Colitis Foundation. I got up every morning planning what I would do that day for what I called “The Lemon-Aid stand”. I would open at 3 and close at 6, and spend the day educating the neighborhood and the community on my disease. I like to tell them Crohn’s is “not just a bathroom disease.” In the end I had raised 100 dollars a day for 3 days, and I would have never guessed the support that I would get.

The day I found out about Camp Oasis I felt like I would pass out because of happiness! I was planning on attending the West Virginia chapter Camp Oasis. I was a little bit disappointed about a virtual camp, but I was still unaware of the overwhelming fun I would have. During Camp we had an Ice breaker night, a dance party (Which I had the time of my life at), cabin talk, and a Talent show. I have made friends that I can talk to when I am feeling sad, or when I have something exciting to share. Just one year of Camp Oasis has changed my life for the better.

The Crohn’s and Colitis Foundation has done so much for my family and I. The Take steps walk has offered us an amazingly fun fundraising challenge, and a great walk to attend. Camp Oasis has helped me make friends I will have for a lifetime, and an awesome program to look forward to. I am so excited to be your Pediatric Honored Hero, and if there is anything I can help you with don’t hesitate to ask. If there is one important thing to remember in life, it is that out differences make us beautiful, strong, and courageous.

Millions of Americans are living with Crohn’s disease or ulcerative colitis, and currently there is no cure. Our team is walking and raising money to support the crucial work of the Crohn’s & Colitis Foundation. Take Steps brings the community together in a fun, family-friendly, and supportive atmosphere and lets patients know they have a community who supports them.

Please help us reach our team goal of $2,500.00 for Take Steps Pittsburgh by donating or registering and fundraising. Your support will help the Foundation invest in cures for the future, while providing support to patients today.

Leaders in Research: The Foundation has been a leader in inflammatory bowel disease (IBD) research since their founding more than 50 years ago. They are accelerating the pace of research by breaking down traditional barriers to patients, data, funding, and collaborations, as well as catalyzing critical cutting-edge research studies and clinical trials at major medical institutions, and financing underdeveloped areas of research.

Empowering Patients and Caregivers: The Foundation serves more than 1.2 million patients annually, empowering patients and caregivers through education, support, and advocacy programs.

Do you know someone who is affected by Crohn’s disease or ulcerative colitis? Join our team and share our fundraising page to spread awareness in the community!

 
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