Duane Evans - Iron Man 2020 Charity
So glad you have found yourself here. Known to my friends and family as my "butt disease", ulcerative colitis has been a part of my life since the winter of 2018. My diagnosis was made official in April of 2018 following a sigmoidoscopy and a colonoscopy. Exercise, balanced diet and a prescription to anti-inflammatory suppositories (woo...) keep my flare-ups in check and allow me to have nearly the same quality of life I had prior to the disease. My condition is chronic and, unfortunately, symptoms are frequent and worsening as of this year. I expect to have another colonoscopy in the new year as I work with my gastroenterologist to manage the disease.
However, I am very lucky.
My father struggled a lot more prior to his diagnosis of Crohn's disease in 2016: his flare-up was so aggressive he could hardly eat for a month.
A close friend of mine has dealt with Crohn's disease since a young age culminating in the removal of a meter of his intestine in his 20s.
A family friend has had a lifetime battle with Crohn's disease and has had to go to even greater lengths: he has had most of his large intestine removed and must use an ostomy bag.
But (no pun intended) there is a great deal you can do to help patients like us living with Crohn's and Ulcerative Colitis! Please help me and people living with the disease by making a donation to this page. I am participating in the Penticton Canadian Iron Man on August 30th 2020 to raise money for people living with the disease; this will be my first Iron Man. A great deal of relief can be brought to patients with your help. Furthermore, as a disease that can feel like you don't have agency over your own body, this highly demanding event and the training required for it puts us back in control. It reminds us that we can still achieve what we want despite any such "butt disease".
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