Oklahoma Pediatric

 Honored Heroes

Team Crohn's Warriors
Jackson Braun
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My name is Jackson Braun and I was diagnosed with Crohn’s Disease at age 10 just two short years ago. I endured months of constant stomach pain, nausea and lost 25 pounds before I was diagnosed with Crohn’s Disease. I was able to achieve clinical remission with a biologic, but sadly I am back in a flare. There are many ups and downs with this disease that I am learning to manage both physically and emotionally as an almost teenager.

It is very important for me to raise awareness about Crohn’s Disease as well as raise money for medical research that will hopefully lead to a cure in my lifetime. Through the Crohn’s and Colitis Foundation pediatric support groups, I have met two wonderful friends my same age – Isaiah and Devon – and we are all Pediatric Honored Heroes for Oklahoma this year representing Crohn’s patients across our great state! Please join me at the 2021 Oklahoma Take Steps Walk and/or give a donation to the Crohn's and Colitis Foundation on my behalf.

 
Devon Schiner

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My name is Devon Schiner, and I am 13 years old. Just over five years ago, my life would be forever changed when I was diagnosed with Crohn’s disease. My health journey has had a lot of ups and downs. I was hospitalized when first diagnosed and after months of heavy doses of steroids and daily 6mp, I finally started to feel better and went into remission for a little over a year. Then a flare up set me back. Biologics had to be my next course of treatment. Multiple changes in medications, course of treatments along with diet modifications is the biggest challenge in figuring out what works for me.

Last year was my first year to participate in the Take Steps Walk. These fundraising events are important to help fund research to hopefully find a cure for Crohn’s someday in my lifetime. Would you please consider donating to the Crohn’s and Colitis Take Steps Walk to support me and others like myself who battle this disease daily? Remember small steps go a long way!

Isaiah Thomas
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Hi. My name is Isaiah, I am 13 years old and I was diagnosed with Crohn’s disease in January of 2019. When I was six years old, I began having mild abdominal pain and bloody stools. After several tests and a colonoscopy, there was not a definitive diagnosis. After four-and-a-half years, I was finally diagnosed with Crohn’s. My original treatment of Humira lasted less than a year and I had a bad flare. My Gastroenterologist added methotrexate to my treatment plan and that is what I am currently taking, Humira and Methotrexate weekly injections, along with some vitamins.                                          

I am not in remission yet but I don’t let that stop me from living my life. I love playing sports, video games, attending church youth, and hanging out with my family and friends. I have been asked to help with research and I always say yes. My favorite research study, so far, was donating blood samples for a study at Emory University. The hope is that they can find out why more black boys are being diagnosed with IBD. My parents always talk about how God is with us and for us even if we are suffering. Sometimes it’s hard but I pray and trust God with my healing, whenever that will be. I hope my story encourages others to trust God and to keep living their life no matter what comes their way.

 

 

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