Welcome to My Personal Page
I was diagnosed with Crohns disease at age 13 but have had it since age 11, when I began experiencing symptoms. At age 16 I had my first surgery to help relieve pain and 1 month later had the life altering surgery of an ireversable colostomy bag. Since then I have had several surgeries to help keep me out of remission. I was also told at an early age I could't have childre due to the scar tissue pushing things around. I have endured a total hysterectomy, a medically necessary breast reduction and suffer from iron deficient anemia. As of November 2019 I underwent surgery to remove the remainer of my large intestine and my colostomy was renamed an ileostomy that was able to stay on the same side after 22 years. I am happy to say that my crohns is in remission.
Over the years I have experienced and learned that speaking up about gut issues is that people aren't to keen to discuss this disease around the table or in public. With social media people have learned to connect world wide, but it has made the idea of meeting in person a bit taboo still. In order to learn from others about how we cope, work, and live sometimes can't be expressed in emails, texts or typed. I am a firm believer that spoken words over the phone or in person is still the best communication.
Over the last 26 years I have became a nurse, local support group leader and went on disability. I participated in several local walks before they were merged with Austin Take Steps walk. I volunteer my personal time to patients that my doctors, friends, and family refer to me to help them cope with a new diagnosis or an ostomy for anyone. I never thought that at age 39 I would be where I am or the things I have endured. In order to help others in the community I crochet in a local group with others to donate our handmade hats, blankets and toys to local shelters, nurseries or any charities that approach us with needs. I believe that helping the community in other ways helps me cope with my own health issues.
About Crohn's disease and ulcerative colitis Known collectively as inflammatory bowel diseases (IBD), Crohn's disease and ulcerative colitis affects almost 1 in 100 people. They are painful, medically incurable diseases that attack the digestive system. Crohn's disease may attack anywhere along the digestive tract, while ulcerative colitis inflames only the large intestine (colon). Symptoms may include abdominal pain, persistent diarrhea, rectal bleeding, fever, and weight loss. Many patients require numerous hospitalizations and surgery. Most people develop the diseases between the ages of 15 and 35; however the incidence is increasing in children. The Crohn's and Colitis Foundation is the largest non-profit, voluntary, health organization dedicated to finding cures for inflammatory bowel diseases (IBD). The Foundation's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who are affected by these diseases. The Foundation works to fulfill its mission by funding research; providing educational resources for patients and their families, medical professionals, and the public; and furnishing supportive services for those afflicted with IBD.
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