My son Jeremy was diagnosed with Crohn’s disease in early 2018 at age seven.
We really did not no what Crohn’s was at the time. The day we got the official Crohn's diagnosis I received a call from his GI and was told Jeremy had stay home from school it was the spring of first grade, at that moment I realized how serious this truly was.
For months, he had a very limited appetite, spent hours in the bathroom, and wasn’t in the mood to do anything.
As his mom we felt trapped with virtually no solutions to aid his suffering. Most people we knew with Crohn’s were adults with a much milder case of the disease. We would cringe when people would give us advice about how we could be solving all of Jeremy’s problems if we just forced him change his diet. We only wish it could be treated that simple.
Despite the constant pain Jeremy was in every day, he kept his head up high. Jeremy would use his humor and passion for art as outlets for getting through each day.
After working through a variety of medications, Jeremy now gets monthly infusions of REMICADE at UCSF Medical Center and has been drastically improving. We’ve been so proud of the bravery of our son being fearless to be connected to an IV for four-hours every month. It’s not something that most eight-year old’s, or adults, can handle very well.
We’re passionate about finding a cure for Crohn’s and Colitis so others don’t have to go through this struggle, especially at such a young age.
The Crohn’s & Colitis Foundation, and the Take Steps Walk has provided us much needed encouragement and support through this difficult time; and exposed us to some valuable resources and connections.
We thank you so much for supporting the Crohn's and Colitis Fountation, supporting Jeremy and, rooting for this great cause to help us beat this disease!